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Posted: Saturday, August 25, 2012 8:07 PM


Manny's chance to live fundraising
Help by purchasing one of my handmande purses at :

On January 13th, 2011, my son was diagnosed with Myeloproliferative Disorder, of the type Polycythemia Vera - this cancer is a rare bone marrow disease that leads to abnormal production of red blood cells. At that point his liver had already been permanently damaged and he was given two weeks to live but overcame the odds. On June of 2011 he was placed on the liver transplant list and awaits a new liver.

Since the day he was diagnosed with this disease, he has been living every day with its consequences and equally lethal complications. He has been diagnosed with Budd-Chiari Syndrome, Acute Kidney Injury, Hyponatremia, Esophageal Varices, Portal Vein Thrombosis, Ascites, Hepatic Hydrothorax, acute Pancreatitis, Gluteal Hematoma, enlarged Spleen and more. He usually has weekly visits to different specialist to maintain his condition under control, and hospitalization when complications occur. His last hospitalization, this past June, was for a month due to a collapsed lung. A tube was placed in his chest and approximately 30 liters of fluid were removed. Also a TIPS procedure was performed (Transjugular Intrahepatic Portosystemic Shunt) to alleviate liver problems.

As his care giver I am committed to his care 24 hours every day. It is almost a cruel joke that the disease that has rob him of his liver has not only destroyed his ability to provide for himself but has also inhibit my ability to provide for him, if we are unable to do so, his opportunity to live will be taken away. Little income generated will not cover for insurance co-pays, medical expenses not covered by insurance, medical supplies, rent and most of the living expenses, which need to be covered while he awaits for his liver transplant and during his post-care, crucial to his recovery.

Thank you for your time and support. Keep us in mind
There is an official fundrasing site for my son, if you would like more information please contact us! For more information on Polycythemia Vera/Budd-Chiari and Liver Transplant please visit the following sites:
Mayo Clinic -Polycythemia Vera 2012 Updated (youtube)
NORD-National Organization for Rare Disorders
National Cancer Institute
MPN Research Foundation
UNOS-United Network for Organ Sharing
UMC AZ-Liver Transplant
UMC AZ-Cancer Center

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